Page 1 of 1: ROP Question

shezyb · Credits: 122 My Scrapbook

My Son is a twin and born at 28 weeks prem, he developed chronic lung disease which he has grown out of but at 10 months he had laser surgery as he has Retinopathy Of Prematurity. He has lost his side vision in both of his eyes due to the surgery. Now he is 2 years and 3 months and become severely light sensitive. I have tried everything, sun glasses he wont wear but he does cover his eyes with his arm and he cries so the light outside is definatley hurting his eyes. He has an appointment to see his eye doctor on the 2nd August and I rang them begging to bring the appointment forward explaining his troubles and they said they are happy to leave his appointment the way it is but if he gets any worse ring my GP. Hmmm how can it get any worse if he is already crying?
I am scared that this may have something to do with his ROP. Isn't it the light sensitivity film that comes away leaving them light sensitive one of the symptoms of ROP?
He has a bad squint, he falls over a lot and bangs into things.

They gave me a 50/50 chance of his going blind after his surgery. I would really like to know scientifcally what is going on with him. Has anyone got any idea's?

Thank You

Shezy

BGM · Credits: 104764 My Scrapbook

Retinopathy of prematurity (ROP) is a disease that affects immature vasculature in the eyes of premature babies. ROP is a disease of premature infants. All babies less than 1500 g birth weight or younger than 32 weeks' gestational age (GA) at birth are at risk of developing ROP.

It can be mild with no visual defects, or it may become aggressive with new blood vessel formation (neovascularization) and progress to retinal detachment and blindness.

The complication like blindness is not frequent & it does not occur in all patients.

There are different stages of ROP ie Stage 0,1,2,3,4 & the treatment vary according to the stage.

Laser surgery (xenon, argon, diode) has been shown to be as effective for ROP

Scleral buckling surgery and/or vitrectomy is usually performed for stages 4 and 5(Advanced stages)

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